This page will be regularly updated with any developments and new resources and guidance related to IDENTIFICATION, screening and follow up of patients.
BSPED Screening and Monitoring Pathway
UK Recommendations Publication (September 2025) includes the screening and monitoring pathway – UK best practice recommendations for children and young people <18years with pre-stage 3 type 1 diabetes, on behalf of the British Society for Paediatric Endocrinology and Diabetes (BSPED)
BSPED Screening and Monitoring Pathway, PDF for download – BSPED screening and monitoring pathway
Publications
Consensus Statement Publication on General Population Screening (July 2026) – International consensus guidance for general population screening for islet autoantibodies to diagnose early‑stage type 1 diabetes: a nominal group technique process
From Screening to Delivery of Disease- Modifying Therapy (March 2026) – From Screening to Delivery of Disease- Modifying Therapy: Real World Follow- Up of Children With Early- Stage Type 1 Diabetes
Consensus Statement Publication on Screening and Monitoring (March 2026) – An international consensus on screening and monitoring early-stage type 1 diabetes: A roadmap to European implementation
Practical, stage‐specific recommendations for early‐stage T1D care (March 2026) – Advancing Early‐Stage Type 1 Diabetes Care: Future Focused Pathways for Identification, Screening, Diagnosis, and Monitoring
ISPAD Clinical Practice Guidelines
Publication (December 2024) – ISPAD Clinical Practice Consensus Guidelines 2024: Screening, Staging, and Strategies to Preserve Beta-Cell Function in Children and Adolescents with Type 1 Diabetes
Currently available screening studies
ELSA
The ELSA Study is screening children aged 2 to 15 and young adults aged 16 and 17 for type 1 diabetes.
Children and young adults can have a simple finger prick test to find out their risk of developing type 1 diabetes.
ELSA is currently open to families in England, Wales, Scotland and Northern Ireland.
Find out more on the ELSA website – ELSA Study Website
T1DRA
The Type 1 Diabetes Risk in Adults (T1DRA) research study is testing a small finger prick blood sample for markers of increased risk to type 1 diabetes.
Participation is FREE, all samples are collected at home and returned using prepaid packaging in the normal post.
Participants who are found to have risk markers for type 1 diabetes are followed up and monitored to help prevent emergency diagnosis and to improve our knowledge of adulthood type 1 diabetes.
Find out more information on the T1DRA Website – T1DRA Study Website
UK Islet Autoantibody research registry
The UKIAB is a research registry of children, young people and adults who have markers of type 1 diabetes in their blood called islet autoantibodies and are at risk of, or have early-stage type 1 diabetes (T1D).
Find out more information on the UKIAB Website – UKIAB Website