July 2022 Bulletin
26/07/2022
1. Save the date
Thames Valley Network meetings
13th September 2-3.30pm Dieticians meeting (VIRTUAL)
20th September 2-3pm Lead PDSN meeting (VIRTUAL)
3rd Nov 2022 1.30-4.30pm – Network Meeting (In person, venue tbc)
1st Feb 2023 9.00-12.30pm- Network Meeting (VIRTUAL)
10th May 2023 9.30-4.30pm- Joint Wessex & Thames Valley education day (In person, venue tbc)
26th September 2023 9.00-12.30pm Network Meeting (VIRTUAL)
2. Conferences Dates 2022/23
15 – 17 September, Rome, Italy
Register here.
13 – 16 October, Abu Dhabi, United Arab Emirates
Register here
2-4 November 22, Belfast
Registration for this event is not yet open
Diabetes professional Care Conference
16 & 17 November, Olympia, London
Register your interest here
Diabetes UK Professional Conference
26 – 28 April, Exhibition Centre Liverpool
Register your interest here
3. Staff Education
Diabetes UK
The Diabetes UK website have an excellent summary of all available postgraduate courses.
Mongenetics training
Royal Devon University Healthcare Trust & University of Exeter are running a two day virtual Monogenetic Diabetes Training Course designed to help clinicians recognise and treat patients with MODY and other forms of monogenetic diabetes. Register here.
Technology
Technology comparison guides are now available in the healthcare professionals section of the National Children & Young People’s Diabetes Network website- click here.
4. Staff Information and Opportunities
Network vice chair role
We have yet to fill the role of Vice Chair for the Thames Valley Network. This role does not have allocated time, and as such is a voluntary position, however it will not require a significant amount of your time over and above what you already do as a member of our network.
That said, if you were keen to involve yourself more in network projects then we certainly would not say no! Taking up a network role will give you the opportunity, should you wish, to liaise and work alongside colleagues from across the integrated care systems that we work with and champion the needs of CYP with diabetes across Thames Valley. In order to develop an MDT leadership approach we are looking for this role to be filled by a Doctor or PDSN. If you are interested please contact Myfi.
Lead paediatrician role
In order to be compliant with the NPDA self-assessment framework as a network we also need to have a named Lead Paediatrician for the network. This role could be combined with the vice chair role, and will not require any input over and above attendance at network meetings.
AIM 2- Network Access to Technology Lead
In order to improve the effectiveness of the CYPDN National Aim 2 “Access to Technology” group, we are looking to identify a CYP Access to Technology Clinical Lead from each CYP regional network. This representative will be fully supported but two regional managers overseeing the group, and will be a key member of the Access to Technology working group.
Role:
- To attend regular Access to Technology meetings of regional Clinical Leads (meeting frequency to be decided/probably bi-monthly or quarterly)
- To be responsible for liaising with the regional NHSE regional Clinical Leads/Managers re. tech issues
- To explore with the CYP & NHSE regional managers whether establishing a regional technology devices forum would be beneficial (for all technology related discussions to include key regional representatives from the ICS, adult and CYP services and NHSE/I)
- To focus on a regional agenda re. reducing tech related inequalities
- To raise concerns about device/data accuracy
- To understand and feedback on technology procurement processes in the region
- To collect and share national and regional information from the CYP networks and the access to tech group via network meetings.
If you are interested in this role please contact Myfi.
NICE guideline update
In June 2022 NICE reviewed evidence on periodontitis in children & young people with Type 1 & Type 2 Diabetes, and have updated their recommendations accordingly. Please see updated NG18 Guidelines here.
Update Sick Day Rules- Network guidelines
It has been pointed out that there was an error in one of the extra insulin tables in our Sick Day Rules Network document. Tis has been corrected and an updated version can be found here. Please update any paper versions that you may keep.
Digibete
You can now send appointment reminders & messages to individual patients through the app. In the Manage Clinic area of the portal you can now search and select patients to send appointment reminders or messages direct to them in their DigiBete app.
The new notification centre in the app enables patients to easily access and view all communications sent through the app, including News items as well as any appointment reminders or messages.
Training films in the clinic portal will soon be updated to include a tutorial on how to use these functions, but in the mean time if you have any questions please contact app@digibete.org
Network Manager roadshow!
Thank you to Milton Keynes who invited me to attend one of their business meetings last week- it was lovely to meet the wider team in person and to spend some time hearing about the service. I am in the process of agreeing dates with other PDUs for me to come out and visit and am really looking forward to spending some time with each of you- it’s a great way for me to learn a bit more about how your service works, what you do really well and the areas that you’d like to improve.
5. CYP, Parents and Carers Information and Events
Network Parents Group on Facebook
The Thames Valley and Wessex Paediatric Diabetes Network Parents Group is a private group available for parents of CYP with Diabetes in the Network. A poster will be sent out to all units soon to advertise this to parent carers.
Digibete Patient Education summer drop in sessions
Digibete are running two onlineApp and Website Training sessions for families across the UK in August. The aim is to help families understand how the app and website might help them to manage their type 1 diabetes whilst at home. Feel free to share session details with your families:
Session 1 – 4th August, 7pm to 8pm
Zoom Link: https://us02web.zoom.us/j/88532433977
Session 2 – 23rd August, 7pm to 8pm
Zoom Link: https://us02web.zoom.us/j/89055752295
Thank you for taking the time to read through this bulletin. Please do let me know if you have news items that you would like to share across the Network for future editions.
Best wishes
Myfi