Cymru Wales

Top Tips for Brecon Group Consent and Registration

  • Prepare registration paperwork in advance and keep with consent forms etc in newly diagnosed patient pack
  • If you have the details of a transferring in patient, before their arrival, remember to ask Rhia if they are already on the Register – It may save you filling out a new registration form and consent form!
  • Talk to families on day one of diagnosis, if possible, and complete as much of the registration form as possible at this time. A lot of information on the family can be obtained by discussing presentation symptoms, HbA1c and family history (family diagnosed with type 1 diabetes).
  • Use the form as the beginning of the patient and families education
  • Let families know what they can expect at the beginning, such as upcoming SEREN education, Multi-Disciplinary Team, out-patient clinics
  • Inform them of the Children and Young Peoples Wales Diabetes Network (and Brecon Group) and the work it does
  • The best time to complete the registration paperwork is as soon as possible, for example when all blood results are in. When put off, the time soon flies, and a month may go by before you know it, thereby missing our deadline
  • Scan completed paperwork and email to Database Manager promptly – rhia.williams2@wales.nhs.uk